It has been a while since a posted anything to this blog. These past few months have been a roller-coaster of crazy. As if being in the middle of a world wide pandemic, which isn't receding, wasn't enough, the fires keeping burning around us, as well.
Along with all of that, I have been on a roller-coaster of my own. Numerous doctor's appointment, tests and screening all summer long. After thinking I was dealing with kidney disease for most of the summer, I finally met with the kidney specialist. It takes months and months to get any appointments at all.
Well, the kidney doctor believes that while I have kidney disease, it was caused by 'something'. He believes it is an auto-immune disease. Most likely Lupus. Well, that's just great. And, many, many more tests and weeks upon weeks of waiting for more doctors visits because, let's face it, our insurance sucks.
October 22
I started this blog post weeks ago, one week after I spent the night i n the hospital with TGA.
Transient global amnesia is a sudden, temporary episode of memory loss that can't be attributed to a more common neurological condition, such as epilepsy or stroke. During an episode of transient global amnesia, your recall of recent events simply vanishes, so you can't remember where you are or how you got there.
It has now been just a month since that event, and our insurance still has not okayed getting the EEG done to see what is happening inside my head.
An electroencephalogram (EEG) is a test that detects electrical activity in your brain using small, metal discs (electrodes) attached to your scalp. Your brain cells communicate via electrical impulses and are active all the time, even when you're asleep. This activity shows up as wavy lines on an EEG recording.
There is a twelve hour window of time in which I have absolutely no memory of what happened, at all. Apparently, I held conversations, walked around, including down some steep stairs to get to our truck and and believed it was 2016.
Having no memory of this is terrifying to me because it is like another person took over my brain. Highjacked my life. And I can't remember any of it. Yet, I, or other me, was a functioning person. What happens if that comes back, and I just disappear completely?
There have been a few snippets of time since then that I also have lost. I know this because I can't remember doing things like taking medication, yet husband and daughter tell me, "Yes. you took it ten minutes ago."
What am I losing that I don't even know about?
But insurance won't cover testing. And, husband is like, "Awww. don't worry about it."
In the meantime, I don't sleep because this began when I woke up 'Four Years Ago'. In 2016. All I really know is what I have been told. I just remember going to bed and then waking from a dream in the hospital twelve ours later. A cat scan and MRI later.
I have my second appointment with the kidney specialist two days after the election. Before that appointment, I having a series of tests, because who doesn't want more blood drawn.
We did have a wedding a couple of weeks ago.
